Ways to Get Involved

There are many ways you can help the Spinal Muscular Atrophy Foundation accelerate the development of a treatment or cure for SMA.  We can’t do it alone.  So, no matter how you decide to get involved, you’ll be making a valuable difference.   

HELP US RAISE FUNDS:

MAKE A DONATION:  Consider a direct contribution to the Spinal Muscular Atrophy Foundation.   You can make an online donation now, set up a recurring gift, learn about corporate matching gift programs, or send a donation by mail.  DONATE NOW    
TRANSFER A GIFT OF STOCK:  Making a gift of appreciated securities can be a tax-advantaged way to support the Foundation.  Call 877-FUND-SMA (New York Residents: 646-253-7100).  A staff member will be available to assist you with the process and answer any questions you may have.
CREATE AN ONLINE CHARITY REGISTRY:  Make your birthday, anniversary, or next special occasion even more meaningful by turning it into a way to support the Spinal Muscular Atrophy Foundation.  Visit JustGive.org for more information and be sure to list the Spinal Muscular Atrophy Foundation as your charity.  (97% of your donation through JustGive.org will be sent to the Foundation.)
MAKE CHARITABLE GIVING A PART OF YOUR WEDDING CELEBRATION:  Consider giving a charitable donation in lieu of favors as a way to thank your guests.   Or create your own online charity registry; in addition to a traditional gift registry, guests can make donations in your name as their wedding gift to you.  Visit JustGive.org for more information and be sure to list the Spinal Muscular Atrophy Foundation as your charity.  (97% of your donation through JustGive.org will be sent to the Foundation.)
SEARCH WITH GOODSEARCH.COM:  Every penny counts and you can earn one for the Foundation every time you search the Internet.  GoodSearch.com is a new search engine that donates half of its revenue to charities designated by its users.  You use it exactly as you would any search engine and it’s powered by Yahoo!.  Just go to GoodSearch.com and be sure to enter the Spinal Muscular Atrophy Foundation as the charity you want to support. 
HOST A FUNDRAISING EVENT:   Perhaps you want to start a letter writing campaign, collect donations in honor or in memory of a loved one, host a pancake breakfast, or maybe run a marathon to raise funds for the Spinal Muscular Atrophy Foundation.  We appreciate all efforts to support the Foundation and FirstGiving.com is a source of ideas, tools, and support for individual fundraisers.  (92.5% of the funds you raise through FirstGiving.com will be sent to the Foundation.)

BE AN ADVOCATE: 

CONTACT YOUR REPRESENTATIVE:  Call or write to your representatives in Washington D.C. requesting they support federal funding of scientific research to find a treatment or cure for SMA and legislation such as the SMA Treatment Acceleration Act. To search for your local representative click here.
SPREAD THE WORD:  We rely on our dedicated supporters to help raise awareness of the Spinal Muscular Atrophy Foundation’s mission.  Please spread the word by telling your family, friends, and colleagues about our work.  

 PARTICIPATE IN THE SMA PATIENT REGISTRY:  The International Spinal Muscular Atrophy Patient Registry connects individuals and families affected by SMA with researchers interested in studying SMA.  The Registry has helped recruit participants for clinical trials and has provided important data for SMA research studies.

STAY IN TOUCH:  Register to receive updates on SMA scientific research, legislation, and special events.   Please be assured that the Foundation takes your privacy seriously; we will never sell or share your contact information.  REGISTER HERE

 

 
Accelerate the Development of a Treatment for SMA DONATE NOW
For Families: A Guide to Standard of Care Consensus Statement CLICK HERE
Get Involved in Clinical Research CLICK HERE
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