News: 2008

27-Oct-2008

Social Security Announces Nationwide Launch of Compassionate Allowances: Spinal Muscular Atrophy Types 0 and 1 included Michael J. Astrue, Commissioner of Social Security, today announced the national rollout of the agency’s Compassionate Allowances initiative, a way to expedite the processing of disability claims for applicants whose medical conditions are so severe that their conditions obviously meet Social Security’s standards.
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24-Oct-2008

SMA Foundation Announces a Pilot Study of Biomarkers for SMA NEW YORK, NY – October 24, 2008 - The Spinal Muscular Atrophy (SMA) Foundation, a nonprofit organization dedicated to accelerating the development of a treatment for SMA, is pleased to announce the launch of a pilot study of Biomarkers for Spinal Muscular Atrophy (BforSMA).
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15-Oct-2008

SMA Patient Registry After many months of anticipation we are pleased to announce the unveiling of the new International Spinal Muscular Atrophy Patient Registry Website! 
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01-Oct-2008

Spinal Muscular Atrophy Treatment Acceleration Act Update The SMA Treatment Acceleration Act is legislation that has been introduced to enhance federal support for Spinal Muscular Atrophy (SMA) research.  Much work has been done in the past few months to garner support on Capitol Hill.  As the Act gets closer to possible consideration by Congress this year, an update on the progress that has been made thus far is noted below:
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17-Sep-2008

Assay Designs, Inc. and the Spinal Muscular Atrophy Foundation announce a collaboration to accelerate the discovery of new therapeutics for Spinal Muscular Atrophy (SMA) Assay Designs, Inc. and the Spinal Muscular Atrophy Foundation announce a collaboration to accelerate the discovery of new therapeutics for Spinal Muscular Atrophy (SMA).
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01-Aug-2008

Senators Obama and Clinton Endorse the SMA Treatment Acceleration Act The SMA Foundation is pleased to announce that Senators Barack Obama (D-IL) and Hillary Clinton (D-NY) have recently signed on as cosponsors of the SMA Treatment Acceleration Act. 
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29-Apr-2008

The Muscular Dystrophy Association Endorses the SMA Acceleration Treatment Act We are very pleased to announce that the Muscular Dystrophy Association (MDA) has endorsed The SMA Treatment Acceleration Act (H.R. 3334 / S. 2042).
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25-Apr-2008

SMA Foundation to Receive Contributions from Build-A-Bear Workshop Fundraising Effort
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24-Apr-2008

Groups Release Family Version of SMA Care Standard

The Patient Advisory Group of the International Coordinating Committee (ICC) for SMA Clinical Trials has published a family-friendly set of guidelines for care in spinal muscular atrophy (SMA) - click here to download the guide - to complement the physician guidelines published in August (for more on the physicians' consensus statement, see "The Journal of Child Neurology.")

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