News: 2006

01-Dec-2006

Industry Leaders with Extensive Clinical and Drug Development Experience Join the Foundation's Scientific Advisory Board
New York, NY – December 1, 2006 – The Spinal Muscular Atrophy Foundation announces the addition of Ivan Lieberburg, Ph.D., M.D. and Edward Kaye, M.D. to its Scientific Advisory Board. They join a distinguished group of business and scientific leaders who help formulate and execute the SMA Foundation’s drug discovery programs...

read more »

10-Nov-2006

Spinal Muscular Atrophy Foundation Receives CNF Advocacy Award of Merit
New York, NY – November 10, 2006 – The Spinal Muscular Atrophy (SMA) Foundation announced today that it has received the 2006 Advocacy Award of Merit from the Child Neurology Foundation (CNF). The award was...

read more »

11-Oct-2006

Lexicon Genetics Awarded Additional Grant for Study of Spinal Muscular Atrophy
The Woodlands, Texas - October 11, 2006 – Lexicon Genetics Incorporated (Nasdaq: LEXG) announced today that its research program to identify targets that may be important in the development of drugs to prevent...

read more »

07-Jun-2006

SMA Foundation Announces Collaboration with PTC Therapeutics
New York, NY – June 7, 2006 – The Spinal Muscular Atrophy Foundation today announced that they have initiated a research and development collaboration with PTC Therapeutics, Inc. (PTC). The collaboration is designed to leverage PTC’s proprietary Gene Expression Modulation by...

read more »

20-May-2006

New push for NIH funding urged
WASHINGTON, D.C. -- Senators urged research advocacy groups and universities yesterday to step up efforts to win more federal funding for the National Institutes of Health, the federal agency that funds most of the country's medical research but is facing a third consecutive year of cuts.

read more »

16-May-2006

Spinal Muscular Atrophy is model for new approaches to orphan drug development
Reprinted with permission from the American Academy of Neurology from Neurology Today; May 16, 2006, Volume 6(10):16-19.

read more »

11-May-2006

Lexicon Genetics Awarded Grant from the United States Army for Study of Spinal Muscular Atrophy
The Woodlands, Texas - May 11, 2006 – Lexicon Genetics Incorporated (Nasdaq: LEXG) announced today that it was awarded a grant from the United States Army Medical Research & Materiel Command (USAMRMC) for the identification of targets that may be important...

read more »

24-Feb-2006

PsychoGenics and SMA Foundation Extend Research Agreement
February 24, 2006 – PsychoGenics Inc. Tarrytown, New York and the Spinal Muscular Atrophy (SMA) Foundation have extended their research agreement to establish and behaviorally phenotype transgenic in vivo models of SMA and test potential therapeutics using these models.

read more »

31-Jan-2006

Critical Research Tools for Spinal Muscular Atrophy Drug Discovery
New York, NY - January 31, 2006 - The Spinal Muscular Atrophy Foundation announced the completion of a new licensing agreement that will facilitate access to intellectual property fundamental to drug discovery efforts for the disease. Spinal muscular atrophy (SMA) is the leading genetic killer...

read more »
The 2008 Annual Report READ NOW

Visit the International SMA Patient Registry

VISIT NOW
Accelerate the Development of a Treatment for SMA DONATE NOW
For Families: A Guide to Standard of Care Consensus Statement CLICK HERE
Adjust font size
Small font size Normal font size Large font size Extra Large font size