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News: 2005

26-Dec-2005

The Today Show, December 26, 2005, featuring the SMA Foundation

On Monday, December 26, 2005, NBC’s The Today Show featured one family’s fight against thgenetic motor neuron disease Spinal Muscular Atrophy and the impact SMA has on parensearching...

23-Dec-2005

New Motor Neuron Center Will Tackle Neurodegenerative Diseases

In Vivo, The Newsletter of Columbia University Medical Center. January/December 2006.

04-Oct-2005

The Spinal Muscular Atrophy Foundation Launches Collaboration for New Disease Models

New York, NY - October 4, 2005 – The Spinal Muscular Atrophy Foundation announced an agreement today with Regeneron Pharmaceuticals, Inc. to develop new animal models of spinal muscular atrophy (SMA), the leading genetic cause of mortality in infants and toddlers..

14-Sep-2005

Drug provides glimmer of hope for children suffering

Ching Wang, MD, PhD, didn't sign up for his pediatric neurology residency in 1990 to watch children die. But, as in nearly any medical specialty, there are some fatal diseases for which no effective treatment exists. Frustrated after delivering grim news to one too many sets of parents, Wang vowed to do something.

01-Sep-2005

SMA Foundation Makes the Case for Research in Rare Disease The errant gene has been isolated, the National Institutes of Health has made the disease a priority and now a young foundation is pitching biotech companies to develop a cure for spinal muscular atrophy, a disabling, often fatal genetic disorder that afflicts some 25,000 Americans.
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01-Aug-2005

SMA: Race is on to Conquer Devastating Childhood Disease InVivo, The Newsletter of Columbia University Medical Center. July/August 2005.
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17-May-2005

New Advisors Bring Diversity, Experience to Spinal Muscular Atrophy Foundation

New York, NY – May 17, 2005 – The Spinal Muscular Atrophy Foundation today announced the addition of six members to its Scientific Advisory Board. The new advisors, some of the most wellrespected individuals in their fields, were specifically sought for the wealth of experience they bring to bear on Foundation efforts to advance drug development in SMA

28-Mar-2005

For Arya: Prominent Wall Street power couple race to find a cure for their daughter before it is too late

"For Arya: Prominent Wall Street power couple race to find a cure for their daughter before it is too late." Forbes. March 28, 2005.

07-Mar-2005

Deadly Disorder Kills Kids, but Lacks Funding

NEW YORK — Two-year-old Owen Cain cannot lift his head or move his limbs. He’s fed through a tube, and even the simple act of sitting in a chair can trigger an alarming breathing spasm.

03-Mar-2005

Prominent researchers at Columbia University receive significant funding to combat SMA

New York, NY – March 03, 2005 – Researchers at Columbia University have received more than $3 million in funding from the Spinal Muscular Atrophy Foundation to conduct research on spinal muscular atrophy (SMA), a neuromuscular disease that is the leading genetic killer of infants and toddlers.

31-Jan-2005

University of Wisconsin-Madison scientists create spinal motor neurons from embryonic stem cells

MADISON - After years of trial and error, scientists have coaxed human embryonic stem cells to become spinal motor neurons, critical nervous system pathways that relay messages from the brain to the rest of the body.

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