News: 2004
29-Nov-2004
Spinal Muscular Atrophy Foundation funds over $15 Million to develop treatments for the leading genetic killer of infants and toddlersNew York, NY – November 29, 2004 – The Spinal Muscular Atrophy Foundation, a nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA) – the leading genetic killer of infants and toddlers – announced that is has funded more than $15 million in research in the last 18 months.
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29-Nov-2004
Columbia Researchers Identify Drug as Therapeutic Candidate For Spinal Muscular AtrophyNew York, Nov. 29 – Using a newly developed technology, a team of Columbia University researchers has uncovered that indoprofen, a nonsteroidal anti-inflammatory drug, may increase the production of a protein lacking in patients with spinal muscular atrophy (SMA), a fatal pediatric genetic disease.
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21-Oct-2004
The Jackson Laboratory to distribute mouse models for Spinal Muscular Atrophy - the leading genetic cause of infant and toddler deathBar Harbor, Maine – October 21, 2004 – The Jackson Laboratory is pleased to announce that it has received support from the Spinal Muscular Atrophy Foundation to make available the first group of mouse models for spinal muscular atrophy (SMA), a neuromuscular disease and the leading genetic cause of death among infants and toddlers.
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24-Sep-2004
Leading Medical Institutions Establish a Clinical Research Network to Study Genetic Killer of Babies and ToddlersNew York, NY – September 24, 2004 – Researchers at Columbia University, Children’s Hospital Boston and The Children’s Hospital of Philadelphia have established a clinical research network to study spinal muscular atrophy (SMA), the leading genetic killer of infants and toddlers.
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13-Sep-2004
CombinatoRx inks R&D deal with foundation Boston Business Journal. September 13, 2004.read more »
07-Sep-2004
Curis lands $5.4M spinal muscular atrophy grant Boston Business Journal. September 7, 2004.read more »
07-Sep-2004
Curis awarded $5.4M to identify treatment for spinal muscular atrophy Mass High Tech. September 7, 2004.read more »
19-Apr-2004
The AAN Foundation and the SMA Foundation announce the recipients of the 2004 Young Investigator Award in Spinal Muscular AtrophyNew York, NY – April 19, 2004 -– The Spinal Muscular Atrophy Foundation today announced that it has awarded new research grants totaling $1.125 million to four outstanding Young Investigators specializing in research on Spinal Muscular Atrophy (SMA), the leading genetic killer of infants and toddlers.
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05-Jan-2004
Neurology Today, "Advocacy for Neurological Disease: The "Family Business" No Family Wants", by Gina ShawThey don’t have MD or PhD degrees. They don’t run research laboratories, direct hospitals, or oversee major academic medical centers. Yet they have helped changed the course of neurological research
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The 2008 Annual Report
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Visit the International SMA Patient Registry
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Accelerate the Development of a Treatment for SMA
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For Families: A Guide to Standard of Care Consensus Statement
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