United States:
Families of SMA
Fight SMA
Miracle for Madison
Muscular Dystrophy Association
SMA Angels Charity

International:
Association Française contre les Myopathies (AFM), France
Deutsche Muskelstiftung (German Muscle Foundation), Germany
DGM-SMA, Germany
Fundación Atrofia Muscular Espinal, Spain
The Jennifer Trust for Spinal Muscular Atrophy, UK
CSMA, Ukraine
SMA Europe
SMA GRUBU, Turkey
The SMA Trust, UK
Treat-NMD Neuromuscular Network, UK